The Association of Hospitalization with Parenting Stress and Quality of Life in Parents of Children with Thalassemia

Authors

  • Fadila Rahmawati Faculty of Medicine, Mataram University, Mataram, Indonesia
  • Titi Pambudi Kurniawaty Departement of Pediatri, Mataram University, Mataram, Indonesia
  • Yudhi Kurniawan Departement of Pediatri, Mataram University, Mataram, Indonesia
  • Agustine Mahardika Departement of Psychiatry, Mataram University, Mataram, Indonesia

DOI:

https://doi.org/10.22487/ta5zcz91

Keywords:

Hospitalization, Parenting Stress, Quality of Life, Thalassemia

Abstract

Background: Children with thalassemia require repeated hospital attendance for transfusion and related care, which may contribute to parental stress and quality-of-life burden. Objectives: This study aimed to assess the association of hospitalization-related attendance with parenting stress and parental quality of life. Methods: This cross-sectional study included 35 parents of children with thalassemia at the NTB Provincial General Hospital. Parenting stress and quality of life were assessed using the PSI-SF and WHOQOL-BREF. Hospital attendance duration, frequency, and interval were analyzed using Spearman, chi-square, and Fisher’s exact tests as appropriate. Results: Low parenting stress was reported by 68.6% of parents and very good quality of life by 88.6%. No statistically significant association was detected between hospital attendance duration, frequency, or interval and parenting stress (p=0.606, 0.884, and 0.121) or quality of life (p=0.951, 0.359, and 0.726). Splenomegaly was associated with parenting stress (p=0.020), and parental age was associated with quality of life (p=0.009). Conclusion: In this small cross-sectional sample, hospitalization-related attendance parameters were not significantly associated with parenting stress or parental quality of life; the findings should be interpreted cautiously because of limited statistical power.

Downloads

Download data is not yet available.

References

1. Yousuf R, Akter S, Wasek SM, Sinha S, Ahmad R, Haque M. Thalassemia: a review of the challenges to the families and caregivers. Cureus. 2022;14(12):e32491. doi:10.7759/cureus.32491

2. Viprakasit V. Clinical classification, screening and diagnosis for thalassemia. Hematol Oncol Clin North Am. 2018;32(2):193-211. doi:10.1016/j.hoc.2017.11.006

3. Shafique F, Ali S, Almansouri T. Thalassemia, a human blood disorder. Brazilian J Biol. 2023;83:e246062. doi:10.1590/1519-6984.246062

4. Wahidiyat PA, Sari TT, Rahmartani LD. Thalassemia in Indonesia. Hemoglobin. 2022;46(1):39-44. doi:10.1080/03630269.2021.2023565

5. Prameswari L, Sari LS, Lestarini IA. Prevalence of suspected beta thalassemia minor based on screening with Mentzer Index and red distribution width in students of SMP Negeri 7 Pujut. Unram Med J. 2020;9(2):124-135. doi:10.29303/jku.v9i2.417

6. Pitun SR, Budiyati AG. Perilaku caring perawat terhadap kecemasan hospitalisasi anak usia pra sekolah (2-6 tahun). J Kesehat. 2020;13(2):144-151.

7. Kurniawan IN, Uyun Q. Penurunan stres pengasuhan orang tua dan disfungsi interaksi orang tua-anak melalui pendidikan pengasuhan versi pendekatan spiritual (PP-VPS). J Interv Psikol. 2013;5(1):111-130. doi:10.20885/intervensipsikologi.vol5.iss1.art7

8. Purba FD, Hunfeld JAM, Iskandarsyah A. Quality of life of the Indonesian general population: test-retest reliability and population norms of the EQ-5D-5L and WHOQOL-BREF. PLoS One. 2018;13(5):e0197098. doi:10.1371/journal.pone.0197098

9. Biswas B, Naskar NN, Basu K, Dasgupta A, Basu R, Paul B. Care-related quality of life of caregivers of beta-thalassemia major children: an epidemiological study in Eastern India. J Epidemiol Glob Health. 2020;10(2):168-177. doi:10.2991/jegh.k.200102.003

10. Alizadeh M, Chehrzad MM, Mirzaee M, Kazemnejad Leyli E. Caregiver burden and related factors in parents of children with thalassemia. J Adv Pharm Educ Res. 2019;9(S2):35-39.

11. Biswas D, Sarkar AP, Sarkar GN, Saha I. Quality of life among parents of thalassemic children in Eastern India. Al Ameen J Med Sci. 2020;13(2):99-107.

12. Mannan M, Khan A, Yaqoob U. Thalassemia in a child and its effect on the mental health of their caregivers. Int J Ment Heal Psychiatry. 2017;3:1-5. doi:10.4172/2471-4372.1000145

13. Choerunisa T, Wirakhmi IN, Suryani RL. Gambaran tingkat kecemasan orang tua terhadap hospitalisasi anak di Rumah Sakit Umum Daerah Ajibarang. J Ilm Kesehat Mandira Cendikia. 2022;1(5):40-48.

14. Ditasari E, Sutriningsih A, Ahmad ZS. Analisa faktor-faktor yang mempengaruhi keputusan pemilihan pelayanan pada pasien One Day Care di Rumah Sakit Panti Waluya Semarang. Nurs News (Meriden). 2019;2(3):21-33.

15. Puspita AE, Estri AK, FAR S. Hubungan dukungan keluarga terhadap kepatuhan menjalani kemoterapi pada pasien kanker payudara di Unit One Day Care Rumah Sakit Panti Rapih Yogyakarta. Carolus J Nurs. 2023;5(2):102-114.

16. Buka IA, Karuniawati TP. Kualitas hidup pasien dengan talasemia. PrimA J Ilm Ilmu Kesehat. 2024;10(2):10-16. doi:10.47506/mjcxk810

17. Wahyuni FA, Supadmi W, Yuniarti E. Hubungan karakteristik pasien dan rejimen kemoterapi terhadap kualitas hidup pasien kanker di RS PKU Muhammadiyah Yogyakarta. J Sains Kesehat. 2021;3(2):310-316. doi:10.25026/jsk.v3i2.488

18. Nurfatimah N. Peran serta orang tua dan dampak hospitalisasi pada anak usia 3-6 tahun di Ruang Anak RSUD Poso. J Bidan Cerdas. 2019;2(2):77. doi:10.33860/jbc.v2i2.187

19. Handayani S, Wardhani CU, Muharni S. Beban caregiver merawat anak penderita thalassemia. J Ilmu Keperawatan Anak. 2023;6(2).

20. Fitriliani P, Rakhmawati W, Rukmasari EA. Gambaran kualitas hidup orang tua yang merawat remaja talasemia di Kabupaten Garut. J Keperawatan BSI. 2020;8(2):173-182.

21. Gani IA, Kumalasari D. Be mindful, less stress: studi tentang mindful parenting dan stres pengasuhan pada ibu dari anak usia middle childhood di Jakarta. J Psikol. 2019;15(2):98-107. doi:10.24014/jp.v15i2.7744

22. Suttorp M, Classen CF. Splenomegaly in children and adolescents. Front Pediatr. 2021;9:704635. doi:10.3389/fped.2021.704635

23. Farmakis D, Porter J, Taher A, Cappellini MD, Angastiniotis M, Eleftheriou A. 2021 Thalassaemia International Federation guidelines for the management of transfusion-dependent thalassemia. HemaSphere. 2022;6(8):e732. doi:10.1097/HS9.0000000000000732

24. Inamdar S, Inamdar M, Gangrade A. Stress level among caregivers of thalassemia patients. Natl J Community Med. 2015;6(4):579-582.

25. Lingga MO, Pakpahan RE, Ginting FSH. Hubungan tingkat stres dengan tekanan darah pada penderita hipertensi usia produktif di Puskesmas Padang Bulan Medan tahun 2023. Innov J Soc Sci Res. 2024;4:2043-2056.

26. Renda BW, Sumarmi S. Tingkat stres dan pola konsumsi terhadap kejadian hipertensi pada pasien dewasa: studi cross-sectional. Media Gizi Kesmas. 2023;12(2):995-1001. doi:10.20473/mgk.v12i2.2023.995-1001

27. Miskam HM, Juhari R, Yaacob NS. Stress and quality of life among mothers with thalassemic children. Int J Stud Child Women, Elder Disabl. 2017;1:176-184.

28. Purnomo JC, Kristiana IF. Hubungan antara dukungan sosial suami dengan stres pengasuhan istri yang memiliki anak retardasi mental ringan dan sedang. J Empati. 2016;5(3):507-512.

29. Fitriani Y, Gina F, Perdhana TS. Gambaran parenting stress pada ibu ditinjau dari status pekerjaan dan ekonomi serta bantuan pengasuhan. Psikostudia J Psikol. 2021;10(2):98. doi:10.30872/psikostudia.v10i2.5697

30. La Tabari MF, Nasir A, Asmaret D, Agustiawan, Antariksa MP. Dampak psikoedukasi keluarga untuk mengurangi stress keluarga yang mendampingi anak dengan retardasi mental. Heal Tadulako J (Jurnal Kesehat Tadulako). 2024;10(4). doi:10.22487/htj.v10i4.1418

31. Sanjaya KDW, Wirawan I. Factors associated with caregiver burden in children with cerebral palsy in developing countries: a systematic review. Heal Tadulako J (Jurnal Kesehat Tadulako). 2025;11(4):535-547. doi:10.22487/htj.v11i4.1757

32. Nugroho IH, Gunawan ANP. Caregiver burden pada pengasuh pasien dementia selama pandemi COVID-19: a literature review. Heal Tadulako J (Jurnal Kesehat Tadulako). 2022;8(2):120-126. doi:10.22487/htj.v8i2.493

33. Hapsari AW, Urbayatun S. Strategi coping stress single mother di Kota Jambi. Heal Tadulako J (Jurnal Kesehat Tadulako). 2022;8(1):11-16. doi:10.22487/htj.v8i1.478

34. Lianovitasari L, Lestari P. Hubungan lama menderita dengan kualitas hidup penderita HIV/AIDS di Kelompok Dukungan Sebaya (KDS) Kasih Kudus Jawa Tengah. Heal Tadulako J (Jurnal Kesehat Tadulako). 2020;6(2):75-81. doi:10.22487/htj.v6i2.94

Downloads

Published

2026-07-31

Issue

Section

Articles

How to Cite

The Association of Hospitalization with Parenting Stress and Quality of Life in Parents of Children with Thalassemia. (2026). Healthy Tadulako Journal (Jurnal Kesehatan Tadulako), 12(3), 412-421. https://doi.org/10.22487/ta5zcz91

Similar Articles

1-10 of 25

You may also start an advanced similarity search for this article.