The Association of Hospitalization with Parenting Stress and Quality of Life in Parents of Children with Thalassemia
DOI:
https://doi.org/10.22487/ta5zcz91Keywords:
Hospitalization, Parenting Stress, Quality of Life, ThalassemiaAbstract
Background: Children with thalassemia require repeated hospital attendance for transfusion and related care, which may contribute to parental stress and quality-of-life burden. Objectives: This study aimed to assess the association of hospitalization-related attendance with parenting stress and parental quality of life. Methods: This cross-sectional study included 35 parents of children with thalassemia at the NTB Provincial General Hospital. Parenting stress and quality of life were assessed using the PSI-SF and WHOQOL-BREF. Hospital attendance duration, frequency, and interval were analyzed using Spearman, chi-square, and Fisher’s exact tests as appropriate. Results: Low parenting stress was reported by 68.6% of parents and very good quality of life by 88.6%. No statistically significant association was detected between hospital attendance duration, frequency, or interval and parenting stress (p=0.606, 0.884, and 0.121) or quality of life (p=0.951, 0.359, and 0.726). Splenomegaly was associated with parenting stress (p=0.020), and parental age was associated with quality of life (p=0.009). Conclusion: In this small cross-sectional sample, hospitalization-related attendance parameters were not significantly associated with parenting stress or parental quality of life; the findings should be interpreted cautiously because of limited statistical power.
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1. Yousuf R, Akter S, Wasek SM, Sinha S, Ahmad R, Haque M. Thalassemia: a review of the challenges to the families and caregivers. Cureus. 2022;14(12):e32491. doi:10.7759/cureus.32491
2. Viprakasit V. Clinical classification, screening and diagnosis for thalassemia. Hematol Oncol Clin North Am. 2018;32(2):193-211. doi:10.1016/j.hoc.2017.11.006
3. Shafique F, Ali S, Almansouri T. Thalassemia, a human blood disorder. Brazilian J Biol. 2023;83:e246062. doi:10.1590/1519-6984.246062
4. Wahidiyat PA, Sari TT, Rahmartani LD. Thalassemia in Indonesia. Hemoglobin. 2022;46(1):39-44. doi:10.1080/03630269.2021.2023565
5. Prameswari L, Sari LS, Lestarini IA. Prevalence of suspected beta thalassemia minor based on screening with Mentzer Index and red distribution width in students of SMP Negeri 7 Pujut. Unram Med J. 2020;9(2):124-135. doi:10.29303/jku.v9i2.417
6. Pitun SR, Budiyati AG. Perilaku caring perawat terhadap kecemasan hospitalisasi anak usia pra sekolah (2-6 tahun). J Kesehat. 2020;13(2):144-151.
7. Kurniawan IN, Uyun Q. Penurunan stres pengasuhan orang tua dan disfungsi interaksi orang tua-anak melalui pendidikan pengasuhan versi pendekatan spiritual (PP-VPS). J Interv Psikol. 2013;5(1):111-130. doi:10.20885/intervensipsikologi.vol5.iss1.art7
8. Purba FD, Hunfeld JAM, Iskandarsyah A. Quality of life of the Indonesian general population: test-retest reliability and population norms of the EQ-5D-5L and WHOQOL-BREF. PLoS One. 2018;13(5):e0197098. doi:10.1371/journal.pone.0197098
9. Biswas B, Naskar NN, Basu K, Dasgupta A, Basu R, Paul B. Care-related quality of life of caregivers of beta-thalassemia major children: an epidemiological study in Eastern India. J Epidemiol Glob Health. 2020;10(2):168-177. doi:10.2991/jegh.k.200102.003
10. Alizadeh M, Chehrzad MM, Mirzaee M, Kazemnejad Leyli E. Caregiver burden and related factors in parents of children with thalassemia. J Adv Pharm Educ Res. 2019;9(S2):35-39.
11. Biswas D, Sarkar AP, Sarkar GN, Saha I. Quality of life among parents of thalassemic children in Eastern India. Al Ameen J Med Sci. 2020;13(2):99-107.
12. Mannan M, Khan A, Yaqoob U. Thalassemia in a child and its effect on the mental health of their caregivers. Int J Ment Heal Psychiatry. 2017;3:1-5. doi:10.4172/2471-4372.1000145
13. Choerunisa T, Wirakhmi IN, Suryani RL. Gambaran tingkat kecemasan orang tua terhadap hospitalisasi anak di Rumah Sakit Umum Daerah Ajibarang. J Ilm Kesehat Mandira Cendikia. 2022;1(5):40-48.
14. Ditasari E, Sutriningsih A, Ahmad ZS. Analisa faktor-faktor yang mempengaruhi keputusan pemilihan pelayanan pada pasien One Day Care di Rumah Sakit Panti Waluya Semarang. Nurs News (Meriden). 2019;2(3):21-33.
15. Puspita AE, Estri AK, FAR S. Hubungan dukungan keluarga terhadap kepatuhan menjalani kemoterapi pada pasien kanker payudara di Unit One Day Care Rumah Sakit Panti Rapih Yogyakarta. Carolus J Nurs. 2023;5(2):102-114.
16. Buka IA, Karuniawati TP. Kualitas hidup pasien dengan talasemia. PrimA J Ilm Ilmu Kesehat. 2024;10(2):10-16. doi:10.47506/mjcxk810
17. Wahyuni FA, Supadmi W, Yuniarti E. Hubungan karakteristik pasien dan rejimen kemoterapi terhadap kualitas hidup pasien kanker di RS PKU Muhammadiyah Yogyakarta. J Sains Kesehat. 2021;3(2):310-316. doi:10.25026/jsk.v3i2.488
18. Nurfatimah N. Peran serta orang tua dan dampak hospitalisasi pada anak usia 3-6 tahun di Ruang Anak RSUD Poso. J Bidan Cerdas. 2019;2(2):77. doi:10.33860/jbc.v2i2.187
19. Handayani S, Wardhani CU, Muharni S. Beban caregiver merawat anak penderita thalassemia. J Ilmu Keperawatan Anak. 2023;6(2).
20. Fitriliani P, Rakhmawati W, Rukmasari EA. Gambaran kualitas hidup orang tua yang merawat remaja talasemia di Kabupaten Garut. J Keperawatan BSI. 2020;8(2):173-182.
21. Gani IA, Kumalasari D. Be mindful, less stress: studi tentang mindful parenting dan stres pengasuhan pada ibu dari anak usia middle childhood di Jakarta. J Psikol. 2019;15(2):98-107. doi:10.24014/jp.v15i2.7744
22. Suttorp M, Classen CF. Splenomegaly in children and adolescents. Front Pediatr. 2021;9:704635. doi:10.3389/fped.2021.704635
23. Farmakis D, Porter J, Taher A, Cappellini MD, Angastiniotis M, Eleftheriou A. 2021 Thalassaemia International Federation guidelines for the management of transfusion-dependent thalassemia. HemaSphere. 2022;6(8):e732. doi:10.1097/HS9.0000000000000732
24. Inamdar S, Inamdar M, Gangrade A. Stress level among caregivers of thalassemia patients. Natl J Community Med. 2015;6(4):579-582.
25. Lingga MO, Pakpahan RE, Ginting FSH. Hubungan tingkat stres dengan tekanan darah pada penderita hipertensi usia produktif di Puskesmas Padang Bulan Medan tahun 2023. Innov J Soc Sci Res. 2024;4:2043-2056.
26. Renda BW, Sumarmi S. Tingkat stres dan pola konsumsi terhadap kejadian hipertensi pada pasien dewasa: studi cross-sectional. Media Gizi Kesmas. 2023;12(2):995-1001. doi:10.20473/mgk.v12i2.2023.995-1001
27. Miskam HM, Juhari R, Yaacob NS. Stress and quality of life among mothers with thalassemic children. Int J Stud Child Women, Elder Disabl. 2017;1:176-184.
28. Purnomo JC, Kristiana IF. Hubungan antara dukungan sosial suami dengan stres pengasuhan istri yang memiliki anak retardasi mental ringan dan sedang. J Empati. 2016;5(3):507-512.
29. Fitriani Y, Gina F, Perdhana TS. Gambaran parenting stress pada ibu ditinjau dari status pekerjaan dan ekonomi serta bantuan pengasuhan. Psikostudia J Psikol. 2021;10(2):98. doi:10.30872/psikostudia.v10i2.5697
30. La Tabari MF, Nasir A, Asmaret D, Agustiawan, Antariksa MP. Dampak psikoedukasi keluarga untuk mengurangi stress keluarga yang mendampingi anak dengan retardasi mental. Heal Tadulako J (Jurnal Kesehat Tadulako). 2024;10(4). doi:10.22487/htj.v10i4.1418
31. Sanjaya KDW, Wirawan I. Factors associated with caregiver burden in children with cerebral palsy in developing countries: a systematic review. Heal Tadulako J (Jurnal Kesehat Tadulako). 2025;11(4):535-547. doi:10.22487/htj.v11i4.1757
32. Nugroho IH, Gunawan ANP. Caregiver burden pada pengasuh pasien dementia selama pandemi COVID-19: a literature review. Heal Tadulako J (Jurnal Kesehat Tadulako). 2022;8(2):120-126. doi:10.22487/htj.v8i2.493
33. Hapsari AW, Urbayatun S. Strategi coping stress single mother di Kota Jambi. Heal Tadulako J (Jurnal Kesehat Tadulako). 2022;8(1):11-16. doi:10.22487/htj.v8i1.478
34. Lianovitasari L, Lestari P. Hubungan lama menderita dengan kualitas hidup penderita HIV/AIDS di Kelompok Dukungan Sebaya (KDS) Kasih Kudus Jawa Tengah. Heal Tadulako J (Jurnal Kesehat Tadulako). 2020;6(2):75-81. doi:10.22487/htj.v6i2.94
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